Data sharing preferences

All patients registered with a GP have a Summary Care Record, unless they have chosen not to have one. The information held in your Summary Care Record gives health and care professionals, away from your usual GP practice, access to information to provide you with safer care, reduce the risk of prescribing errors and improve your patient experience.

Your Summary Care Record contains basic information about allergies and medications and any reactions that you have had to medication in the past.

Some patients, including many with long term health conditions, have previously agreed to have additional information shared as part of their Summary Care Record. This additional information includes information about significant medical history (past and present), reasons for medications, care plan information and immunisations.

You can also opt out of having a Summary Care Record altogether. This means that you do not want any information shared with other authorised, registered and regulated health and care professionals involved in your direct care, including in an emergency.

The purpose of SCR is to improve the care that you receive, however, if you don’t want to have an SCR you have the option to opt out.

Regardless of your past decisions about your Summary Care Record preferences, you can change your mind at any time.

Sharing your health records using JUYI Gloucestershire's Shared Care Record System JUYI is a secure online system for sharing information in Gloucestershire, giving local health and social care professionals directly involved in your care instant access to your health and social care records. If you require treatment in another NHS healthcare setting such as an Emergency Department or Minor Injury Unit, those treating you are better able to give you appropriate care if the most up-to-date information about you were available to them. This information can now be shared electronically, via JUYI.

The information will be used by authorised health and social care professionals directly involved in your care to provide you with safer, more consistent care, as quickly as possible, whether you are in hospital, at a GP surgery or any other place where care is accessed. These records will be used only for the purpose of enabling informed care to be supplied directly to you as an individual.

What information is in JUYI?

The data sets currently shared are detailed on the JUYI website. JUYI will not include sensitive information relating to sexual health, termination of pregnancy, HIV status or fertility treatment.

What if I don’t want to share my information?

You can object to sharing your information electronically using JUYI by returning the form overleaf to your GP Practice. This may result in delayed or sub-optimal care, particularly if you are incapacitated. Parents, guardians or someone with power of attorney can ask for the records of people in their care not to be shared, but ultimately it is the GPs decision whether to share information, or not, because of their duty of care. If you are caring for someone and feel that they can understand, then you should make the information about JUYI available to them. Please ask at your GP practice for details of where to find more information about JUYI or go to the JUYI website. If you object to sharing your information electronically an entry will be put on your record to prevent your information from being shared.

Can I change my sharing preference?

Yes, you can change your sharing preference at any time, although this may take a few days to register in the system.

Enhanced Sharing is the SystmOne sharing model that allows record sharing between SystmOne organisations where they are cared for.

Sharing in

If the patient record is marked to share data into the organisation, your GP practice will be able to view information entered by any SystmOne service that has set your patient record to share out. If you choose to dissent sharing in, your GP practice will not be able to view any of the information entered by other organisations and will only be able to view information entered at their organisation.

Sharing out

If the patient record is set to share out, the information entered at your GP practice will be visible at all other SystmOne organisations where you are currently cared for (where a share in has been recorded).